{
  "url": "https://openlegislation.uk/eu-decision-2006-89/annex/division-1/division-2/division-2.1/division-2.1.4",
  "json_url": "https://openlegislation.uk/eu-decision-2006-89/annex/division-1/division-2/division-2.1/division-2.1.4.json",
  "legislation": "eudn/2006/89",
  "legislation_title": "Commission Decision of 10 February 2006 adopting the work plan for 2006 for the implementation of the programme of Community action in the field of public health (2003-2008), including the annual work programme for grants (Text with EEA relevance) (2006/89/EC)",
  "legislation_url": "https://openlegislation.uk/eu-decision-2006-89",
  "path": "annex/division/1/division/2/division/2.1/division/2.1.4",
  "kind": "division",
  "number": "2.1.4",
  "heading": "Developing strategies and mechanisms for preventing, exchanging information on and responding to non-communicable disease threats, including gender-specific health threats and rare diseases (Article 3.2.d., Annex — point 2.3)",
  "text": "Indicators and data on non-communicable diseases have to be collected with long-term and sustainable collections in mind, taking into account the ECHI strategy and Eurostat standards. Proposals should set out suggestions and methods to sustain a routine register, a survey basis, or be based on future modules from the European Health Survey System or using a combination of sources.\nPriority areas to be addressed and/or given special attention are: Sustainable routine collection of information and data has to be established or improved for diseases for which a solid indicators base definition exists; use of this information for evaluating Public Health Programmes ;\nAreas of disease information not yet covered;\nInformation and the definition of indicators on neurodegenerative, neurodevelopment and non-psychiatric brain diseases relating to prevalence, treatments, risk factors, risk reduction strategies, cost of illness and social support;\nInformation and the definition of indicators on health effects of endocrine disruption;\nInformation and definition of indicators to improve relevant information for specific aspects of women’s gynaecological and menopausal health (e.g. endometriosis);\nSupport for reports and consensus building on the above points;\nProposals contributing to the EU-strategy on Mental Health, as developed following the Commission's Green paper on Mental Health :\n(a) More data on the various determinants of mental health in the EU population and international harmonisation of mental health indicators;\n(b) More information (health/social/economic status) about vulnerable groups at risk of developing mental ill-health and/or of committing suicide in the EU (examples: unemployed, migrants and refugees, sexual and other minorities). The information provided should take the form of data generation.\nPriority being given, for rare diseases, to generalist networks for improving information, monitoring and surveillance. Priority actions will be:\n(a) Reinforcement of the exchange of information using already existing European information networks on rare diseases and promotion of better classification and definition;\n(b) Development of strategies and mechanisms for exchange of information among people affected by a rare disease, or volunteers and professionals involved;\n(c) Definition of relevant health indicators and development of comparable epidemiological data at EU level;\n(d) Organisation of a Second European Conference on Rare Diseases in 2007 or 2008;\n(e) Develop European Networks of Centres of Reference for Rare Diseases;\n(f) Technical support for exchange of best practice and development of measures for patient groups.\nIn the field of mortality, development and analysis of codification practices for causes of death where practices differ at national level or where an appropriate aggregation (e.g. smoking-related deaths) is a problem.",
  "extent": "E+W+S+N.I.",
  "status": null,
  "version": "current",
  "annotations": [
    {
      "type": "footnote",
      "label": "f1",
      "text": "This is the case for mental diseases, oral health, asthma and chronic obstructive respiratory diseases, musculoskeletal diseases (with particular attention to osteoporosis and arthritic and rheumatic disorders) and cardiovascular diseases."
    },
    {
      "type": "footnote",
      "label": "f2",
      "text": "That includes tasks of inventories of sources and definition of indicators, according to the ECHI strategy, for: haematological diseases (including haemophilia), immunological disorders, allergies except asthma, genito-urinary diseases and nephrology disorders, gastroenterological diseases, endocrinological diseases, ear-nose and throat disorders, ophthalmology disorders and dermatology diseases as well as diseases related to environmental factors."
    },
    {
      "type": "footnote",
      "label": "f3",
      "text": "That includes diseases not yet covered by the Public Health Programme as Parkinson, Multiple Sclerosis, Epilepsy, Amyotrophic lateral sclerosis, Attention Deficit Hyperactivity Disorders, Cognitive retardation and disruption of motor, perceptual, language and socio-emotional functions. It will also include stroke, headache disorders and chronic pain (e.g. Chronic Fatigue Syndrome and Fibromyalgia)."
    },
    {
      "type": "footnote",
      "label": "f4",
      "text": "Refer also to FP6 Scientific Support to Policies, 5th Call, SSP-5A Areas 2.1 & 2.2. See: http://fp6.cordis.lu/index.cfm?fuseaction=UserSite.FP6ActivityCallsPage&ID_ACTIVITY=500"
    },
    {
      "type": "footnote",
      "label": "f5",
      "text": "COM 2005(484) of 14 October 2005 — Green paper: Improving the mental health of the population: towards a strategy on mental health for the European Union. See: http://europa.eu.int/comm/health/ph_determinants/life_style/mental/green_paper/mental_gp_en.pdf"
    }
  ],
  "outstanding_effects": [],
  "provenance": {
    "source": "legislation.gov.uk",
    "source_url": "https://www.legislation.gov.uk/eudn/2006/89/annex/division/1/division/2/division/2.1/division/2.1.4",
    "retrieved_at": "2026-11-01T15:17:42.791617+00:00"
  },
  "licence": "Open Government Licence v3.0",
  "licence_url": "https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/",
  "attribution": "Contains public sector information licensed under the Open Government Licence v3.0. Source: legislation.gov.uk, The National Archives."
}