{
  "url": "https://openlegislation.uk/eu-decision-2010-728/annex/division-3",
  "json_url": "https://openlegislation.uk/eu-decision-2010-728/annex/division-3.json",
  "legislation": "eudn/2010/728",
  "legislation_title": "Commission Decision of 27 July 2010 on the appointment of the members of the European Union Committee of Experts on Rare Diseases set up by Decision 2009/872/EC 2010/C 204/02",
  "legislation_url": "https://openlegislation.uk/eu-decision-2010-728",
  "path": "annex/division/3",
  "kind": "division",
  "number": "3",
  "heading": "Projects in the field of rare diseases financed by programmes of Community action in the field of health",
  "text": "3.1.\nList in alphabetical order of representatives from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health including three members of the pilot European Reference Networks on rare diseases\nLast name\nFirst name\nInstitute or organisation of affiliation\nAymé\nSégolène\nOrphanet Inserm\nDonadieu\nJean\nHopital Trousseau\nDonnai\nDian\nEuropean Network of Centres of Expertise in Dysmorphology\nFregonese\nLaura\nCHUV Lausanne\nGarne\nEster\nHospital Lillebaelt-Kolding\nTaruscio\nDomenica\nNational Center for Rare Diseases at the Istituto Superiore di Sanità\nVives Corrons\nJoan Luis\nEuropean Network for Rare Congenital Anaemias\nWagner\nThomas\nEuropean Centres of Reference Network for Cystic Fibrosis\nWebb\nSusan\nHospital de Sant Pau de Barcelona\n3.2.\nList in alphabetical order of alternates from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health\nLast name\nFirst name\nInstitute or organisation of affiliation\nDubertret\nLouis\nFondation Rene Touraine\nEleftheriou\nAndroulla Anastasiou\nThalassemia International Federation\nGatta\nGemma\nFondazione IRCCS, Instituto Nazionale dei Tumori\nKaminska\nMagdalena\nEuropean Paediatric Hodgkin Network\nNelen\nVera\nProvinciaal Instituut voor Hygiene\nNguyen\nGérard\nRett Syndrome Europe\nVittozzi\nLuciano\nCentro Nazionale Malattie Rare\nWeill\nAlain\nEuropean Haemophilia Consortium\nZeidler\nCornelia\nMedizinische Hochschule Hannover",
  "extent": "E+W+S+N.I.",
  "status": null,
  "version": "current",
  "annotations": [],
  "outstanding_effects": [],
  "provenance": {
    "source": "legislation.gov.uk",
    "source_url": "https://www.legislation.gov.uk/eudn/2010/728/annex/division/3",
    "retrieved_at": "2026-11-01T15:15:57.273404+00:00"
  },
  "licence": "Open Government Licence v3.0",
  "licence_url": "https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/",
  "attribution": "Contains public sector information licensed under the Open Government Licence v3.0. Source: legislation.gov.uk, The National Archives."
}