# Commission Decision of 27 July 2010 on the appointment of the members of the European Union Committee of Experts on Rare Diseases set up by Decision 2009/872/EC 2010/C 204/02, Division 3: Projects in the field of rare diseases financed by programmes of Community action in the field of health Extent: E+W+S+N.I. 3.1. List in alphabetical order of representatives from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health including three members of the pilot European Reference Networks on rare diseases Last name First name Institute or organisation of affiliation Aymé Ségolène Orphanet Inserm Donadieu Jean Hopital Trousseau Donnai Dian European Network of Centres of Expertise in Dysmorphology Fregonese Laura CHUV Lausanne Garne Ester Hospital Lillebaelt-Kolding Taruscio Domenica National Center for Rare Diseases at the Istituto Superiore di Sanità Vives Corrons Joan Luis European Network for Rare Congenital Anaemias Wagner Thomas European Centres of Reference Network for Cystic Fibrosis Webb Susan Hospital de Sant Pau de Barcelona 3.2. List in alphabetical order of alternates from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health Last name First name Institute or organisation of affiliation Dubertret Louis Fondation Rene Touraine Eleftheriou Androulla Anastasiou Thalassemia International Federation Gatta Gemma Fondazione IRCCS, Instituto Nazionale dei Tumori Kaminska Magdalena European Paediatric Hodgkin Network Nelen Vera Provinciaal Instituut voor Hygiene Nguyen Gérard Rett Syndrome Europe Vittozzi Luciano Centro Nazionale Malattie Rare Weill Alain European Haemophilia Consortium Zeidler Cornelia Medizinische Hochschule Hannover --- Source: https://www.legislation.gov.uk/eudn/2010/728/annex/division/3 (the official version) Page: https://openlegislation.uk/eu-decision-2010-728/annex/division-3 Contains public sector information licensed under the Open Government Licence v3.0. Source: legislation.gov.uk, The National Archives.