OpenLegislation

Division 5 The consent form shall explain the rights of the patient as regards her/his respective consent(s) to share personal data and in particular provide the information that the patient:F1

United Kingdom

Original text. Later amendments are not shown.

  1. (a)

    has the right to give or withhold any of the consents and this will not affect her/his care;

  2. (b)

    can withdraw the consent given previously at any time;

  3. (c)

    has the right to know which data are shared in a Network and to access data held about them and request corrections of any errors;

  4. (d)

    can request the blocking or erasure of her/his personal data and has the right to data portability.

Annotations

Textual amendments

F1

Inserted by Commission Implementing Decision (EU) 2019/1269 of 26 July 2019 amending Implementing Decision 2014/287/EU setting out criteria for establishing and evaluating European Reference Networks and their Members and for facilitating the exchange of information and expertise on establishing and evaluating such Networks (Text with EEA relevance).