{
  "url": "https://openlegislation.uk/national-health-service-act-2006/section-1E",
  "json_url": "https://openlegislation.uk/national-health-service-act-2006/section-1E.json",
  "legislation": "ukpga/2006/41",
  "legislation_title": "National Health Service Act 2006",
  "legislation_url": "https://openlegislation.uk/national-health-service-act-2006",
  "path": "section/1E",
  "kind": "section",
  "number": "1E",
  "heading": "Duty as to research",
  "text": "(1) In exercising functions in relation to the health service, the Secretary of State must facilitate or otherwise promote—\n(a) research on matters relevant to the health service, and\n(b) the use in the health service of evidence obtained from research.\n(2) The research that the Secretary must facilitate or otherwise promote under subsection (1)(a) includes research into cancers that in the opinion of the Secretary of State are rare cancers.\n(3) In discharging the duty under subsection (1)(a) in relation to those cancers, the Secretary of State must, in particular, ensure that there are such arrangements in place as the Secretary of State considers appropriate to—\n(a) enable potential participants in clinical trials to be identified and contacted, and\n(b) ensure that a person (to be known as “the National Specialty Lead for Rare Cancers”) is appointed with a job description that includes promoting and facilitating research into rare cancers by—\n(i) providing advice in relation to the design and planning of research, and\n(ii) facilitating collaboration between interested persons.\n(4) In this section “rare cancer” means a cancer that affects not more than 1 in 2000 people in the United Kingdom.",
  "extent": null,
  "status": null,
  "version": "current",
  "annotations": [
    {
      "type": "F",
      "label": "F1",
      "text": "S. 1E inserted (1.4.2013) by Health and Social Care Act 2012 (c. 7), ss. 6, 306(4); S.I. 2013/160, art. 2(2) (with arts. 7-9)"
    },
    {
      "type": "F",
      "label": "F2",
      "text": "S. 1E renumbered as s. 1E(1) (5.5.2026) by Rare Cancers Act 2026 (c. 8), ss. 2(1), 5"
    },
    {
      "type": "F",
      "label": "F3",
      "text": "Words in s. 1E inserted (1.7.2022) by Health and Care Act 2022 (c. 31), ss. 40, 186(6); S.I. 2022/734, reg. 2(a), Sch. (with regs. 13, 29, 30)"
    },
    {
      "type": "F",
      "label": "F4",
      "text": "S. 1E(2)-(4) inserted (5.5.2026) by Rare Cancers Act 2026 (c. 8), ss. 2(2), 5"
    }
  ],
  "outstanding_effects": [],
  "provenance": {
    "source": "legislation.gov.uk",
    "source_url": "https://www.legislation.gov.uk/ukpga/2006/41/section/1E",
    "retrieved_at": "2026-10-29T09:13:55.183741+00:00"
  },
  "licence": "Open Government Licence v3.0",
  "licence_url": "https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/",
  "attribution": "Contains public sector information licensed under the Open Government Licence v3.0. Source: legislation.gov.uk, The National Archives."
}