Section 2 Secretary of State’s duties as to researchI1

the existing text becomes subsection (1);

after that subsection insert—

“(2)

The research that the Secretary must facilitate or otherwise promote under subsection (1)(a) includes research into cancers that in the opinion of the Secretary of State are rare cancers.

(3)

In discharging the duty under subsection (1)(a) in relation to those cancers, the Secretary of State must, in particular, ensure that there are such arrangements in place as the Secretary of State considers appropriate to—

(a)

enable potential participants in clinical trials to be identified and contacted, and

(b)

ensure that a person (to be known as “the National Specialty Lead for Rare Cancers”) is appointed with a job description that includes promoting and facilitating research into rare cancers by—

(i)

providing advice in relation to the design and planning of research, and

(ii)

facilitating collaboration between interested persons.

(4)

In this section “rare cancer” means a cancer that affects not more than 1 in 2000 people in the United Kingdom.”