Division 3 Projects in the field of rare diseases financed by programmes of Community action in the field of health
United Kingdom
3.1.
List in alphabetical order of representatives from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health including three members of the pilot European Reference Networks on rare diseases
| Last name | First name | Institute or organisation of affiliation |
|---|---|---|
| Aymé | Ségolène | Orphanet Inserm |
| Donadieu | Jean | Hopital Trousseau |
| Donnai | Dian | European Network of Centres of Expertise in Dysmorphology |
| Fregonese | Laura | CHUV Lausanne |
| Garne | Ester | Hospital Lillebaelt-Kolding |
| Taruscio | Domenica | National Center for Rare Diseases at the Istituto Superiore di Sanità |
| Vives Corrons | Joan Luis | European Network for Rare Congenital Anaemias |
| Wagner | Thomas | European Centres of Reference Network for Cystic Fibrosis |
| Webb | Susan | Hospital de Sant Pau de Barcelona |
3.2.
List in alphabetical order of alternates from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health
| Last name | First name | Institute or organisation of affiliation |
|---|---|---|
| Dubertret | Louis | Fondation Rene Touraine |
| Eleftheriou | Androulla Anastasiou | Thalassemia International Federation |
| Gatta | Gemma | Fondazione IRCCS, Instituto Nazionale dei Tumori |
| Kaminska | Magdalena | European Paediatric Hodgkin Network |
| Nelen | Vera | Provinciaal Instituut voor Hygiene |
| Nguyen | Gérard | Rett Syndrome Europe |
| Vittozzi | Luciano | Centro Nazionale Malattie Rare |
| Weill | Alain | European Haemophilia Consortium |
| Zeidler | Cornelia | Medizinische Hochschule Hannover |